Seventeen-year-old Sam Berns died on Friday from complications due to Progeria, a rare genetic disease that appears to bring on early aging.
Berns was the star of the 2013 HBO documentary Life According To Sam, which saw him and his family looking for treatments to help him and other children battling the disease.
Last year, Sam gave a moving TED talk on his philosophy for a happy life.
The family of Sam Berns confirmed today that he passed away Friday evening, January 10, due to complications from Progeria.Sam, age 17, was diagnosed at 22 months of age with Progeria. His parents, Drs. Leslie Gordon and Scott Berns, established The Progeria Research Foundation in 1999 to find the cause, treatment and cure. Children with Progeria live an average of 13 years.In 2013, HBO Documentaries broadcast the story of Sam Berns in Life According to Sam , and his courage and spirit moved everyone who came to know him personally or was inspired by his story. Sam also shared his life philosophy at TEDxMidAtlantic in October 2013.The entire PRF community mourns the loss of this remarkable young man who not only inspired PRF's creation, but also touched millions of people worldwide. The family requests privacy at this time until arrangements can be made. Expressions of sympathy and support may be expressed using #prfsam on Twitter and The Progeria Foundation Facebook page and/or directed to The Progeria Research Foundation at P.O. Box 3453, Peabody, MA 01961-3453.
"I loved Sam Berns and am richer for having known him. He was a special young man whose inspirational story and positive outlook on life touched my heart. I am so lucky to have had the opportunity to spend time with him and to get to know his incredible family," Kraft said.
Alan White is a news editor for BuzzFeed News and is based in London.